I have wanted to share all of our good news but wasn't sure how to go about it but finally am taking the plunge. Please know this is my experience. All children are different and respond to psych meds differently but since my daughter has done so amazingly well on this new medication. I felt compelled to share about it with you.
I've blogged in the past a little about out journey so far. You can read more about it here .
In December of 2012 we started our first of many new
normals but Princess was stable. Unfortunately the medication that made her
stable also made her crave food especially carbs. She ballooned up to
over 100 lbs by May of 2013. Her pdoc weaned her off of that med with
the hopes of starting a new med soon. Well becasue of an insurance snafu we
did not get to start my daughter on a new medication So last summer Princess was in and out of medical facilities over the course of two months trying to get her meds just
right. She would get discharged and be home a few days then would end up
having to go right back because she would become so unsafe. Some parents with children like mine have coined the term "Street and Treat." That was very true for us. For a while I felt like I was living in the movie "Groundhog Day." My husband and I were seriously considering a Residential Treatment Center because things had gotten so
In September we were finally able to get Princess in a therapeutic day
school that the public school agreed to pay for but she was still very
In October when we were at our wit's end, our pdoc suggested we try this
new med she had heard about at a conference that she recently attended.
She said that it had been used to control behaviors in kids like mine.
It had been used for a long time in Parkinson's patients but just
recently in kids. With nothing to lose I agreed to try it. I was scared
to death that this was not going to work and we would eventually end up
having to place my child in an RTC in a few months. Well lo and behold it
was the wonder drug.
I cannot begin to tell you what a difference this drug, Amantadine, has
made in my daughter's life! She is like a different child. She can
attend and focus. She her acts of aggression are considerably less frequent and shorter. Her
executive functioning has improved dramatically. Her SPD issues are
almost non existent. The change in my child is so dramatic that I cannot
believe it is the same child. It is like her behaviors were getting in
the way of us being able to see who she truly is inside.
Even when she was stable in 2012, she was nothing like what we are
seeing now. Her teachers are noticing as well. I can honestly say that I
am enjoying spending time with my child. I no longer dread when the
next rage is coming.
Two additional benefits are that we have decreased her other meds
significantly and she has lost all of the weight she put on. We were
able to go off of one med and are dereasing another. It is the pdoc's hope that eventually Princess will only need to be on one or two meds in addition to Amantadine.
I'll end this by saying that if any of what I am saying sounds
intriguing to you, I encourage you to ask your child's doctor about considering
Amantadine for your child. I'm posting some links to some studies/ research
about Amantadine if you are interested. Here's one. Here's another. The second link has the information about 1/2 to 2/3's of the way down the page. The facility is a highly respected residential treatment center in Texas.
We had almost lost all hope. We are beginning to dream again.
Never give up!